Pizza and Movie Night

IMG_2477Thursday April 18 will be Pizza and Movie night!  We will be promoting Down syndrome as part of Disability Awareness Week.  The movie will feature people with Down syndrome.

Please RSVP this event to bigbenddsa@gmail.com for a pizza count.

For more information about Disability Awareness Week, go to gatheringplacealpine.org

See you there!!

World Down Syndrome Awareness Day!

  World Down Syndrome Awareness Day is coming up!  It is March 21, 2013.  This year, I am unable to do a big event for this day due to our preparations for Disability Awareness Week, however, I would like to acknowledge the day, and make y’all a part of Disability Awareness Week April 14-21, 2013.

There are alot of people across the country doing a fun promotion on March 21 called Rock your Socks… they are wearing crazy socks (colorful knee highs) in celebration of the day.  This would be fun in the schools.  I have enclosed a flyer to announce it for you.

I would also like to include y’all in our DAW events.  On Sunday, March 21, we are doing our kickoff.  We will have booths for different disabilities and organizations.  I would love to have Special Olympics represented and Big Bend Down Syndrome will be on display with info about DS.  On Wednesday, March 24, we will have a celebration of DS at the Gathering Place with Becky.  She has a couple of movies with actors with DS that she would like to show.

Then, at the end of the week, on Sunday March 22, we will have an Amazing Amigos dance.  We would love to have any teens or adults at the dance.

If you would like more information about DAW, go to gatheringplacealpine.org

Please vote for Becky!

Becky has entered the running for the next Buddy Cruise Self Advocate Speaker!  She has made it to the finals and is counting on you to vote for her!  To tell the judges that you want to vote for Becky, go to http://www.buddycruise.org/contact-us.aspx

Thank you for voting for Becky as the next Buddy Cruise Self Advocate Speaker!

To see Becky’s video about the Buddy Cruise… go to http://youtu.be/lD9ycfb6re4

Free Camp for kids with Down Syndrome!

Texas Lions Camp Holding Their 2nd
Down Syndrome Camp
Last summer the Texas Lions Camp held
their 1st camp for children and teens with
Down Syndrome. The camp was a huge
success, and they are excited to announce
that they are holding it again this upcoming
summer.
The camp will be offered on July 15-21,
2012 for ages 12-16. The program will
include up to 75 participants, and is
expected to fill up. Texas Lions Club is
located in Kerrville.
To register for the program, or to find out
more information about the Texas Lions
Camp please visit their website at
http://www.lionscamp.com. If you have questions
regarding registration please contact Camp
Registrar Stephanie Hodges at
tlc@lionscamp.com or call 830.896.8500.

World Down Syndrome Day Balloon Release

The Big Bend Down Syndrome Association hosted the World Down Syndrome Day Balloon Release at Kokernot park today.   Mayor, Jerry Johnson read a proclamation (attached) of World Down Syndrome Day.  We had families and schools attend from Alpine, Marfa, Sanderson and Ft Stockton with adults and children with Down syndrome.  It was a great celebration of Down syndrome!
Every event brings people with Down syndrome and their families together, which is the goal of the Big Bend Down Syndrome Association.  We hope to help these families get together on a regular basis to provide support for each other.  There are certain challenges that are inherent to Down syndrome and we can encourage each other as we raise our children and encourage our adults toward independence.
BBDSA would like to thank everyone who made this event possible!  Thank you to the volunteers, to Porters for the balloons, the local newspapers for helping us to get the word out, and those who attended in support of those with Down syndrome.

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Press Release BBDSA Balloon Release

Press Release – World Down Syndrome Day will be celebrated in Alpine, TX
3-8-12
PRESS RELEASE – FOR IMMEDIATE RELEASE ON THURSDAY MARCH 8, 2011

Big Bend Down Syndrome Association of Alpine, TX would like to invite the community to the Big Bend Down Syndrome Balloon Release happening on 3/21/12 at 1:00 pm at Kokernot Park.  This is part of the International World Down Syndrome Day celebration that is held around the world.
We would like to invite you to participate by releasing a balloon in the name of those you know who have Down syndrome.  There will be a short program about Down syndrome before we release the balloons.  We would like everyone to help us spread the word and invite your friends and families. For more information, go to http://bigbenddownsyndrome.org or call 432-294-4028.

Attached to this email is a promotional video about WDSD and a local event flyer for distribution.

Thank you
Big Bend Down Syndrome Association
PRESS RELEASE – United Nations adopts resolution to designate 21 March as “World Down Syndrome Day” from 2012 – Down Syndrome International, 16 November 2011

Wed, 2011-11-16
PRESS RELEASE – FOR IMMEDIATE RELEASE ON WEDNESDAY 16 NOVEMBER 2011

Down Syndrome International is delighted to announce that a resolution to designate 21 March as “World Down Syndrome Day”, to be observed every year beginning in 2012, was adopted by consensus during the plenary meeting of the Third Committee of the United Nations General Assembly on Thursday 10 November 2011.

The resolution was proposed and promoted by Brazil, following an original request by the Brazilian Federation of Down Syndrome Associations, who worked with Down Syndrome International (DSi) and its members to launch an extensive campaign to generate international support. The resolution was eventually co-sponsored by 78 UN Member States.

Down syndrome groups and associations around the world campaigned for their governments to co-sponsor the resolution. In addition, DSi launched an international petition for the adoption of World Down Syndrome Day by the UN. This received more than 12,000 signatures in a 2 week period and was presented to the Chair of the Third Committee.

DSi has coordinated World Down Syndrome Day (WDSD) since 2006, held on 21 March (21/3) to signify the uniqueness of the triplication (trisomy) of chromosome 21 which causes the genetic condition Down syndrome. The aim of the day is to raise awareness and understanding of a condition which affects approximately 1 in 800 births worldwide, and to promote the inherent rights of persons with Down syndrome to enjoy full and dignified lives and be active participants in their communities and society.

Activities and events which take place on this day typically showcase the abilities and accomplishments of persons with Down syndrome and encourage independence, self-advocacy and freedom for persons with Down syndrome to make their own choices. To date, WDSD has been observed in over 60 countries around the world.

From 2012, the United Nations will invite all its Member States, relevant organisations of the UN system, international organisations, as well as civil society, including non-governmental organisations and the private sector, to observe WDSD and actively raise public awareness of Down syndrome.

This will ensure a major step forward towards our goal for WDSD to be observed and celebrated by persons with Down syndrome, their families and friends, those who live and work with them and all persons who wish to promote and ensure quality of life and human rights for all persons with Down syndrome.

DSi would like to thank everyone who has supported this campaign, with particular thanks to the Government of Brazil, the Brazilian  Federation of Down Syndrome Associations, all of our member organisations who appealed to their governments for support, and to everyone who signed our international petition.

-END-

For further information on World Down Syndrome Day (WDSD), please visit the DSi website http://www.ds-int.org or the WDSD website http://www.worlddownsyndromeday.org.

Press Contact:

Andrew Boys – Tel: 0044 (0)20 8614 5124 Mob: 0044 (0)7810 153294 Email: contact@ds-int.org

Down Syndrome International -
Langdon Down Centre, 2A Langdon Park, Teddington, Middlesex, United Kingdom, TW11 9PS.
Website: http://www.ds-int.org

Editors Notes:

Down Syndrome International (DSi) is a UK based international charity, comprising a membership of individuals and organisations from all over the world, committed to ensuring quality of life and human rights for all people with Down syndrome. Our members include people with Down syndrome, parents, family members and friends, carers, professionals, practitioners, researchers, organisations and people who are interested in Down syndrome.
World Down Syndrome Day is a global awareness day observed on 21 March each year. This date (21/3) represents the 3 copies of chromosome 21, which is unique to people with Down syndrome, and people and organisations worldwide celebrate on this day in a variety of different ways.
Down syndrome is a life-long genetic condition from conception. All people with Down syndrome will have some degree of learning disability but many will go on to lead full and semi-independent lives.
There is estimated to be up to 7 million people who have Down syndrome living worldwide.
Please refer to attached Guidance Notes regarding use of terminology.

BBDSA celebrates World Down Syndrome Day!

Big Bend Down Syndrome Association will be celebrating World Down Syndrome Day on 3/21/12 at 1:00 at Kokernot ParkAlpine, TX.

We would like to invite you to this special event on 3/21/12 called World Down Syndrome Day.  We hope that you can pass this information on to your friends, relatives, co-workers, etc to come out and join us.

World Down Syndrome day is celebrated all over the world and the Big Bend Down Syndrome Association is participating by hosting a Balloon Release.  We will be meeting at Kokernot Park Alpine on 3/21/12 at 1:00 pm to celebrate Down syndrome.  This will be a fun event for everyone.  We will be releasing balloons with the names of people with Down syndrome who are in our lives.  You can bring your own balloons, or let us know how many you need.  We will provide balloons at the event.

Here is the link to the international website for you to learn more about WDSD.

http://www.ds-int.org

Rebecca Page, a self – advocate speaker, will be speaking about Down syndrome and is also available to speak to groups, schools, etc.

Thank you for your support of Big Bend Down Syndrome Association and people with Down syndrome!

United Nations adopts resolution to designate 21 March as WDSD

PRESS RELEASE – United Nations adopts resolution to designate 21 March as “World Down Syndrome Day” from 2012 – Down Syndrome International, 16 November 2011

 

Wed, 2011-11-16

PRESS RELEASE – FOR IMMEDIATE RELEASE ON WEDNESDAY 16 NOVEMBER 2011

Down Syndrome International is delighted to announce that a resolution to designate 21 March as “World Down Syndrome Day”, to be observed every year beginning in 2012, was adopted by consensus during the plenary meeting of the Third Committee of the United Nations General Assembly on Thursday 10 November 2011.

The resolution was proposed and promoted by Brazil, following an original request by the Brazilian Federation of Down Syndrome Associations, who worked with Down Syndrome International (DSi) and its members to launch an extensive campaign to generate international support. The resolution was eventually co-sponsored by 78 UN Member States.

Down syndrome groups and associations around the world campaigned for their governments to co-sponsor the resolution. In addition, DSi launched an international petition for the adoption of World Down Syndrome Day by the UN. This received more than 12,000 signatures in a 2 week period and was presented to the Chair of the Third Committee.

DSi has coordinated World Down Syndrome Day (WDSD) since 2006, held on 21 March (21/3) to signify the uniqueness of the triplication (trisomy) of chromosome 21 which causes the genetic condition Down syndrome. The aim of the day is to raise awareness and understanding of a condition which affects approximately 1 in 800 births worldwide, and to promote the inherent rights of persons with Down syndrome to enjoy full and dignified lives and be active participants in their communities and society.

Activities and events which take place on this day typically showcase the abilities and accomplishments of persons with Down syndrome and encourage independence, self-advocacy and freedom for persons with Down syndrome to make their own choices. To date, WDSD has been observed in over 60 countries around the world.

From 2012, the United Nations will invite all its Member States, relevant organisations of the UN system, international organisations, as well as civil society, including non-governmental organisations and the private sector, to observe WDSD and actively raise public awareness of Down syndrome.

This will ensure a major step forward towards our goal for WDSD to be observed and celebrated by persons with Down syndrome, their families and friends, those who live and work with them and all persons who wish to promote and ensure quality of life and human rights for all persons with Down syndrome.

DSi would like to thank everyone who has supported this campaign, with particular thanks to the Government of Brazil, the Brazilian Federation of Down Syndrome Associations, all of our member organisations who appealed to their governments for support, and to everyone who signed our international petition.
-END-
For further information on World Down Syndrome Day (WDSD), please visit the DSi website www.ds-int.org or the WDSD website www.worlddownsyndromeday.org.
Press Contact:

Andrew Boys – Tel: 0044 (0)20 8614 5124 Mob: 0044 (0)7810 153294 Email: contact@ds-int.org

Down Syndrome International -
Langdon Down Centre, 2A Langdon Park, Teddington, Middlesex, United Kingdom, TW11 9PS.
Website: www.ds-int.org
Editors Notes:

  • Down Syndrome International (DSi) is a UK based international charity, comprising a membership of individuals and organisations from all over the world, committed to ensuring quality of life and human rights for all people with Down syndrome. Our members include people with Down syndrome, parents, family members and friends, carers, professionals, practitioners, researchers, organisations and people who are interested in Down syndrome.
  • World Down Syndrome Day is a global awareness day observed on 21 March each year. This date (21/3) represents the 3 copies of chromosome 21, which is unique to people with Down syndrome, and people and organisations worldwide celebrate on this day in a variety of different ways.
  • Down syndrome is a life-long genetic condition from conception. All people with Down syndrome will have some degree of learning disability but many will go on to lead full and semi-independent lives.
  • There is estimated to be up to 7 million people who have Down syndrome living worldwide.
  • Please refer to attached Guidance Notes regarding use of terminology.

Upcoming Christmas Party!

Amazing Amigo Group’s First Party

Saturday December 10, 2011 5-9 PM

St. Paul’s Episcopal Church

If you or someone you know is an adult with a disability, please pass the word to them!  There will be dinner provided and music for dancing afterward!

Mark your calendars!   To print a flyer to share, click here   Christmas2011

Providing and Building Communities with help from the Big Bend Down Syndrome Association, St. Paul’s Episcopal Church and A Care Community!

                  

 

 

 

BBDSA’s 1st Buddy Walk!

The first annual Buddy Walk was a great success!  We had almost 100 people come out to support us and raised enough money to cover our costs, and to pay for our Non-Profit Tax status!  THANK YOU TO ALL OF OUR SPONSORS!

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